Conference Speakers 2017
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Sunday 8th October
Dr Adamali’s main interests are in the management of patients with interstitial lung disease, its diagnoses and treatment. He is involved in the diagnosis and the management of idiopathic pulmonary fibrosis, hypersensitive pneumonitis, sarcoidosis, connective tissue (scleroderma, rheumatoid disease, sjogren disease) related interstitial lung disease, smoking related interstitial lung disease, pulmonary vasculitis and occupational and drug induced lung disorders.
Dr Melissa Wickremasinghe
Melissa Wickremasinghe trained in respiratory medicine at the Royal Brompton Hospital and St Mary's hospital. She was awarded her PhD in respiratory epithelial cell chemokine networks in 2001 which she completed at Imperial College. She took up her consultant post in 2007 and has set up a lung fibrosis and sarcoidosis service at St Mary's Hospital Imperial College NHS Helathcare Trust which is now recognised and designated as one of only a few specialist centres in the UK. She hold a multi-disciplinary meeting for lung fibrosis and sarcoid which is the gold standard of care for all cases and especially so for complex cases. her ongoing research interests are in granulomatous lung diseases including sarcoidosis and tuberculosis which is reflected in her publications and also to her contributions to a recent definitive textbook called Sarcoidosis. She is also an expert in interventional bronchscopy performing complex procedures weekly include Endobronchial ultrasound and mediastinal node sampling.
Emma Harris completed her nurse training at St James University Hospital in Leeds and has worked in a variety of nursing roles in Leeds, Basildon, Cambridge and Papworth. She has been an Interstitial Lung Disease (ILD) Specialist nurse at Papworth NHS Trust in Cambridgeshire since 2010. She has worked within respiratory medicine since 2001 and has worked as a lung cancer nurse specialist, a TB nurse specialist, respiratory nurse specialist and a sister on a respiratory ward. She is currently working as an ILD advanced nurse practitioner running interstitial lung disease nurse led clinics.
Anna Murphy is a consultant respiratory pharmacist at University Hospitals of Leicester NHS Trust and honorary visiting professor at DeMontfort University. The clinical aspect of her post offers assessment, medicines optimisation, monitoring and advice to people with respiratory disease, working both in hospital and primary care. People with ILD, asthma and COPD are referred to Anna for medicine optimisation and support, in particular prescribing and monitoring of high cost and high risk medicines. Working across Leicestershire the post includes interface care and the development of services for respiratory patients. Anna currently works with several national groups and organisations on issues surrounding prescribing in respiratory disease. Anna has published widely in peer reviewed journals, is author of Asthma-in-Focus and recently produced the “7-Steps to Success” education materials.
Dr Sharon Fleming
Sharon Fleming recently worked as the Head of Research in Nursing at the Royal Brompton and Harefield NHS Foundation Trust for 18 years. She has worked in nursing research for 23 years. She has worked on Randomised Controlled Trials evaluating patient education before cardiac surgery and patients’ relatives support in the intensive care unit; systematic reviews on the psychological effects of asthma and a study exploring the patient’s experiences of waiting for cardiac surgery. She has also completed qualitative research projects which capture patients’ experiences of their care. She was awarded the 2011 Akinsanya award for Innovation in Doctoral Studies in Nursing for her PhD study which explored the experiences of children with asthma and their carers in a specialist paediatric respiratory clinic. Sharon’s recent work captures patients’ experiences and facilitates co-production work with patients and staff. Her recent research studies focus on pulmonary rehabilitation for patients with COPD and the experiences of ambulatory oxygen for patients with Interstitial Lung Disease.
Fiona has over 25 years’ experience as a qualified nurse during which time she has been able to obtain experience within the community and acute hospital setting. After nine years within the Emergency Admission Unit working as a deputy sister, and following a secondment opportunity within the Respiratory Nursing Service at the James Paget University Hospital, Fiona achieved the post of Respiratory Nurse Specialist over five years ago.
Working generically within the Respiratory Nursing Team, Fiona is currently offers expertise to patients admitted with acute respiratory conditions, including acute hypercapnic respiratory failure, patients receiving home oxygen and review of respiratory patients within the outpatients department. Currently, her main responsibility is to lead and deliver the commissioned Pulmonary Rehabilitation Programme.
Growing use of competences, are we fit to practice?
Jane Scullion, based in Leicestershire has been a Respiratory Nurse Consultant for more than 15 years and has over twenty five years of experience in working with people with respiratory conditions in a variety of roles.
She is appointed on a sessional basis by the Academic Health Science Network as one of the Respiratory Clinical Leads to work on putting innovation into practice and with the Strategic Clinical Network to improve service provision and support a Respiratory Network. She is also a member of the East Midlands Clinical senate. Jane works across primary and secondary care and is keen to see the artificial divide between these improved in the interests of patients and services developed rationally. She is a Regional Clinical lead for Home Oxygen and mentors one of the community oxygen services. In her clinical role she works with many chronic respiratory conditions, in particular, people with difficult asthma, COPD and those with interstitial lung disease, where she has a particular interest in the psychology of chronic illness, coping mechanisms, end of life issues and of the impact of these on patients and their carers'. Widely published Jane sits on the Editorial board of Thorax and Primary Health Care, and is an RCN advisor for NICE. Jane has been a Trustee of the Primary Care Respiratory Society UK (PCRS-UK) since 2012. In her capacity as a Trustee she is chair of the PCRS-UK lay reference group. Jane is also a Trustee for Education for Health, a member of the UK Inhaler Group (UKIG) and more recently ADMIT; she is also East Midlands Regional Chair for the British Lung Foundation (BLF).
Monday 9th October
Anne-Marie is a NIHR Clinical Research Fellow at the National Heart and Lung Institute, Imperial College London and Royal Brompton Hospital, London. Her research utilises patient centred and mixed method approaches. Her primary research has been the development of a patient-reported outcome measure for patients with idiopathic pulmonary fibrosis (IPF-PRoM ©2016 Royal Brompton & Harefield NHS Foundation Trust) to determine the impact of emerging treatments for patients with IPF. The IPF PRoM is incorporated in the IPF App ©patientMpower and undergoing validation in UK and Ireland. In collaboration with Imperial College Health Care Trust, Anne Marie is developing an IPF patient reported experience measure (IPF-PREM). She also collaborates on projects exploring the impact of singing techniques and mindfulness for breath management in patients diagnosed with IPF supported by UK charities. Anne-Marie has previously held university positions as a senior lecturer / lecturer teaching interdisciplinary Advanced Practice, non-medical prescribing and research methodologies. She assesses applicants to the RCN accreditation of Advanced level Practice scheme and continues to teach on respiratory modules at London Southbank University Anne Marie represents ILD nursing interests at the program committee of the ATS nursing Assembly. Anne Marie is co-chair of the ILD Interdisciplinary network; secretary to nursing group at ERS Assembly 9 and committee member of the European Idiopathic Pulmonary Fibrosis & Related Disorders Federation. She is the author/co-author of numerous peer-reviewed publications on ILD and works collaboratively across the international ILD community
Patients and carers under one CaNoPy
Dr Ben Hope-Gill
Subspecialist training in interstitial lung diseases (ILD) was undertaken at the National Jewish Centre for Respiratory Diseases in Denver, Colorado in 2004.
Appointed to a substantive consultant post in Cardiff and Vale University Health Board in 2005. Chairs the South Wales ILD MDT. He is currently an Assistant Medical Director at Cardiff and Vale University Health Board with responsibility for undergraduate and postgraduate medical education.
Defining the ILD pallative care patient, what tools are in the box? (NAT-ILD)
Miriam Johnson is Professor of Palliative Medicine at Hull York Medical School, Director of the Wolfson Palliative Care Research Centre, Co-Director of the Supportive care, Early Diagnosis and Advanced disease Research group at the University of Hull and Director of the NIHR Academic Training Programme for East Yorkshire. Her clinical and research interests include mechanisms and management of breathlessness and inequalities in palliative care service provision e.g. for people with non-malignant disease such as heart failure and respiratory disease. The projects employ a wide range of research methodologies (clinical trials of drug or complex interventions, qualitative studies, observational, secondary data analysis, data linkage studies) and collaborative partners are involved across different disciplines and countries. She has published widely and holds grants from a variety of bodies (NIHR, NHMRC, Dunhill Medical Trust, Marie Curie Cancer Care/CRUK, Yorkshire Cancer Research, British Heart Foundation). She is palliative care specialty joint lead for the Yorkshire and Humber Comprehensive Research Network. She set up one of the UK’s first integrated palliative care services for people with heart failure.
Spirituality in practice, rituals and sacred space
Revd Dame Sarah Mullally
As a former nurse, Bishop Sarah had a distinguished service in the NHS before ordination, culminating in her appointment as the government’s Chief Nursing Officer for England in 1999, when she was the youngest person to be appointed to the post. She was ordained in 2001 and served her curacy in St Saviour’s Battersea Fields, initially as a self-supporting minister. She left her post as Chief Nursing Officer in 2004 to take up full time ministry becoming a Team Rector in Sutton, Surrey in 2006. In 2012 she was installed as Canon Treasurer at Salisbury Cathedral. Bishop Sarah was consecrated on the 22nd July 2015 at Canterbury Cathedral and was the fourth woman bishop to be appointed by the Church of England, and the first in the South West. Aged 54, she is married to Eamonn, who works as business architect and they have two children, age 25 and 20. She was made a Dame Commander of the British Empire in 2005 in recognition of her outstanding contribution to nursing and midwifery. Bishop Sarah is an independent Governor at King’s College London University
Trans-Atlantic palliative care measure in IPF
Dr Kathleen Lindell¹s programme of research is directed toward improving the quality of life for patients with advanced lung disease, specifically Idiopathic Pulmonary Fibrosis (IPF) and their family caregivers. As a pulmonary clinical nurse specialist, her research focus developed from her experience working to improve support available to patients with IPF and their caregivers. Her goal is to assure patients and caregivers are aware of the most recent education available to improve their knowledge, and engaging in advocacy efforts to increase awareness of this disease. Her research has provided seminal findings regarding the need for earlier provision of palliative care and earlier initiation of discussions regarding EOL planning for patients with IPF. Dr Lindell¹s long-term goal is to become a successful independent academic researcher who designs and tests interventions to improve palliative care preparedness of patients with life-limiting illness and their family caregivers.
Farmers tweets and grinders, how to manage hypersensitivity pneumonitis
Dr Gareth Walters is a NHS consultant in occupational and interstitial lung diseases at Heart of England NHS Foundation Trust, and lead the regional occupational lung disease service at Birmingham Chest Clinic on Great Charles Street, Birmingham. He takes NHS referrals for all aspects of work-related lung disease, from any healthcare professional or occupational health practitioner. Gareth completed a MD research thesis on improving barriers to the diagnosis of occupational asthma, at the Institute of Occupational and Environmental Medicine, University of Birmingham in 2015, and retain a research interest in occupational airways diseases. Gareth is also a member of GORDS(UK) and sits on the British Thoracic Society specialist advisory group for occupational and environmental lung diseases.
Asbestosis, to be or not to be - the money or the meds
Dr Jennifer Hoyle is a Consultant Respiratory Physician and Occupational Lung Disease Lead at Pennine Acute NHS Trust, based at North Manchester General Hospital. She has run a busy Occupational Lung Disease department there since 2004, is a member of GORDS UK (Group of Occupational Respiratory Disease Specialists) and the British Thoracic Society SAG. Dr Hoyle is an Honorary Lecturer at Manchester University and is a member of the SWORD Committee there. Dr Hoyle has numerous publications in Occupational Lung Disease including Interstitial Occupational Diseases.
MDT case discussions - Dr Lisa Spencer, Dr Erica Thwaite, Aintree ILD MDT and Professor Sherwood Burge.
Dr Lisa Spencer is a Consultant Respiratory Physician, Lecturer at the University of Liverpool and leads the Liverpool Interstitial Lung Fibrosis Service. She was an invited clinical expert on the NICE single technology appraisal for pirfenidone and on the NICE selection topic committee for nintedanib. Lisa has extensive experience in IPF/ILD clinical trials having been a UK investigator since 2004. She was a founding member of the BTS ILD registry - still serving as a steering committee member and recently ended a term on the BTS ILD Specialist Advisory Group
Professor Sherwood Burge
Professor Sherwood Burge set up the regional occupational lung disease and interstitial lung disease services in Birmingham, UK, having previously developed hospital services for COPD, lung cancer, resuscitation and difficult asthma. Trained in general medicine, respiratory medicine, occupational medicine and allergy/immunology. Tried retiring (twice), now mainly outpatient and teaching work. Contributions include a series of studies in COPD showing the futility of steroid trials and the development methods of diagnosis of occupational asthma and hypersensitivity pneumonitis suitable for non-specialist use (OASYS) which is freely available from www.occupationalasthma.com. Main current research interests are in clinical aspects of occupational and interstitial lung diseases, particularly the role of the ILD MDT. A strong supporter of the nursing and clinical scientist roles inmanaging difficult issues related to chronic disease management and work.