14th February 2016

European IPF Patient Charter: unmet needs and a call to action for healthcare policymakers

Francesco Bonella, Marlies Wijsenbeek, Maria Molina-Molina, Annette Duck, Rosalba Mele, Klaus Geissler, Wim Wuyts
DOI: 10.1183/13993003.01204-2015 Published 1 February 2016

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Abstract Introduction

Patient advocacy groups play an important role in supporting patients with chronic diseases and promoting better care. The aim of this patient–physician initiative was to gather perceptions from European idiopathic pulmonary fibrosis (IPF) patient advocacy groups regarding inequalities and unmet needs in IPF care, in order to develop a Patient Charter to advocate for better care…..

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