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New Chair Anne-Marie Russell’s Address

A message from the ILD Network Chair Anne-Marie Russell It was a privilege to accept the position of chair on 9th October 2017 at our second ILD Network conference. I look forward to serving you well during my term of office. Thank you to committee and to our former chair Geraldine Burge who has set a very solid foundation upon which to build and expand the network.   Conference We were delighted to have so many delegates at conference from […]

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Building a research career

https://ild-inn.org.uk/?page_id=3426&preview=true

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The Mike Bray IPF Research Fellowship A £300,000 grant to fund major IPF research project

The Mike Bray IPF Research Fellowship : Action for Pulmonary Fibrosis The Mike Bray IPF Research Fellowship is a £300,000 grant that will be awarded over three years to an outstanding research project, which enhances understanding of the causes of IPF or advances treatments. It is named after and in memory of the charity’s founder and former chairman, who passed away earlier this year. Idiopathic Pulmonary Fibrosis is a fatal lung disease with no known cause, no cure and limited treatments. […]

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Action for Pulmonary Fibrosis elects a new chair, Stephen Jones

Action for Pulmonary Fibrosis elects a new chair, Stephen Jones This week APF announced that Stephen Jones has been elected as their new chair and the ILD INN would like to welcome Steve to the post. Steve is very passionate about support groups and understands first-hand the journey of IPF patients and the importance of having a local group. It will be fantastic to work with Steve as APF move forward in the coming years. We want to also take […]

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Thank you Geraldine

In September 2015 we met in Birmingham for the first meeting of what was by the end of the weekend to become the ILD-INN. Little did we know at the time of the journey we were about to start and how far the ILD-INN would have come in just 2 years under the guidance of Geraldine Burge who agreed to sit as the inaugural chair. From the networks initial conception Geraldine has been the driving force behind the networks development. […]

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ILD-INN Annual Conference 2017

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Support Group Coordinator (London and South East Region) 12 months starting ASAP

Role:               Support Group Coordinator (London and South East Region) Contract:        12 months starting ASAP  Pay:                £200 per day,  2 days a week   Role – core objective: To support and develop the charity’s support group work in London and South East England and to work strategically to drive the growth and development of new groups. Role’s main duties and responsibilities: Develop a strategy and plan for growing groups in London and the South East Implement this plan, identifying, approaching and supporting healthcare professionals […]

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Respiratory Level 7 (MSc) modules starting soon

Respiratory Level 7 (MSc) modules starting soon Are you studying at MSc level or thinking of trying a Masters module? Two Education for Health Level 7 modules are starting soon, as part of our unique inter-professional postgraduate provision relating to respiratory practice. Looking to build on existing knowledge and experience of non-invasive ventilation? The Non-Invasive Ventilation (NIV) and Respiratory Failure Level 7 module starts on 25 September and has study days in Warwick on 12 October and 29 January. Concerned about […]

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Animated Explanation of Scleroderma

  Animated Explanation of Scleroderma   Veiw here

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Resilience A framework supporting hospice staff to flourish in stressful times

Resilience A framework supporting hospice staff to flourish in stressful times   This piece of work was initiated by Hospice UK in response to the report issued by the Commission into the Future of Hospice Care in 2013. That report forecasted a future that would demand significant change on the part of hospices, which in turn would make further demands on their workforce – both staff and volunteers.  

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Exeter Respiratory Genomics workshop

        Genomic technologies are set to revolutionise the health sector on a global scale. Ultimately, this will result in greater patient care through the delivery of personalised medicine. Our series will provide an in-depth overview of genomic medicine and a greater understanding of disease inheritance patterns, as well as enable participants to focus on specialist areas. Join us for our Exeter Expert Series on: • Respiratory 12-13 October 2017 • Cardiology 2-3 November 2017 • Gastroenterology 23-24 […]

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NICE has today published the Air pollution: outdoor air quality and health National Guideline.

NICE has today published the Air pollution: outdoor air quality and health National Guideline.   You can view the by following this link: https://www.nice.org.uk/guidance/ng70.   For those of you that contributed, we would like to send you a thank-you a letter and certificate on behalf of the RCN.  Please forward your postal address so I can arrange to send these to you in recognition of your involvement.   We would be grateful if you could promote use of the Guidelines/standards […]

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Job opportunity – Interstitial Lung Disease specialist nurse Band 6. University Hospital of South Manchester NHS Foundation Trust

An exciting opportunity has arisen for a registered nurse with 1-2 years of respiratory experience to join the Interstitial Lung Disease Service. Working within the Interstitial Lung Disease Specialist service you will look after a complex and diverse group of patients. The post involves monitoring patients with Interstitial Lung disease in a clinical setting. The ideal candidate needs to exhibit a keen interest in management of Interstitial Lung Disease, patient education, breathlessness management and Palliative care. You will also be […]

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Long Term Conditions Conference which is taking place at The University of Salford on the 14th of July

The Long Term Conditions Conference which is taking place at The University of Salford on the 14th of July. Experts from across the healthcare sector discuss the latest challenges facing the NHS. Understand how patient-centered care and community-based approaches could ease the pressure on hospitals, see how the latest technology can play a role in managing long term conditions and analyse examples of best practice. Topics discussed on the day NHS Five Year Forward Annual Health Budget Prevention Supported self care I am now able to offer University […]

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EU-IPFF have launched their new website

The EU-IPFF has recently launched it’s website take a look at the link below https://euipff-foundation.squarespace.com/    

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South West Interstitial Lung Disease Interdisciplinary Network June Meeting

Managing Patients with Interstitial Lung Disease 12th June, 2017, 1pm-4.30pm Holiday Inn, Dean Gate Avenue, Taunton, TA1 2UA Agenda 1pm Lunch & Registration 1.30pm Welcome 1.40pm Individual introductions & Heather Lamb Current ILD experience 2.00pm Oxygen, what shall we do? Sarah Lines With a break at 2.45pm for coffee 3.00pm IPF exacerbation or drug reaction? How do we treat? Michael Gibbons 4.30pm Close Heather Lamb ILD Nurse Specialist, Bristol Sarah Lines ILD Nurse Specialist, Exeter ILD – INN www.ild-inn.org.uk RSVP: […]

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Interstitial Lung Disease Nurse position Band 6 Part-time 3 days Fixed Term 12 months

  We currently have an exciting opportunity to join our expanding nationally commissioned ILD service as a part-time Band 6 ILD Nurse  within the respiratory and allergy service at Imperial College Healthcare NHS Trust providing services across three sites at Charing Cross, Hammersmith and St Mary’s Hospital.   Working as part of the multi-disciplinary team along-side our consultants and under the supervision of our Band 7 ILD CNS, you will be expected to support the nursing service to provide the […]

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Training for Primary Care – March Dates

The ILD – Interdisciplinary Network with the support of Action for Pulmonary Fibrosis is presenting training for Primary care in 2017, at the following dates and locations: 15th March, 12.30-4.30pm               Norwich, Norfolk 23rd March, 7.30-9pm                      North Norfolk – Venue TBC 28th March, 7.30-9pm               South Norfolk – Venue TBC The speaker for all 3 dates is Sandra Olive. Other […]

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