Parliamentary Launch- 12th July
“Fit for the Future: Future-proofing care for patients with IPF”
On 12th July 2016 Action for Pulmonary Fibrosis met members of the All-Party Parliamentary Respiratory Group and other MPs to call for immediate action by NHS England to improve care for patients affected by Idiopathic Pulmonary Fibrosis and to mandate data collection of people diagnosed with the disease.
The charity’s new report, “Fit for the Future: Future-proofing care for patients with IPF”, launched at the event demonstrates that there are significant geographical variations in both the availability and the delivery of basic, essential care for people with this terminal lung disease. Highlighting the challenges faced by patients and their carers. The report calls for simple changes that could help change the lives of IPF patients:
The report can be accessed on the Action for Pulmonary Fibrosis website via the link HERE.