15th July 2016

The Action for Pulmonary Fibrosis Parliamentary Event 12/7/16

Future Proofing Care for Patients with IPF

Emma Harris from the ILD-INN, ILD Nurse Specialist Papworth Hospital attended the Action for Pulmonary Fibrosis Parliamentary Event in London this week and sent us this overview of the Event.

The aim of the event was to highlight the knowledge gap around the true scale of IPF in the UK and the implications for IPF patients in the future. The event launched the Action for Pulmonary Fibrosis latest report ‘Fit for the future: Future-proofing care for patients with IPF’. The report identifies the challenges the NHS faces in continuing to provide high-quality care for patients with IPF in light of financial pressures, complex patient needs and a rapidly ageing population, and what needs to be done to ensure patients with IPF can maintain hope for the future. Stephen McPartland MP, Chair of the APPG on Respiratory Health in conjunction with APF called for the essential collection of data to ensure that every patient with IPF gets the care they need, in order to empower the NHS to plan effectively to meet the needs of these patients both now and in the future. Tony Gowland an IPF sufferer gave a heartfelt account of what it is like to live with IPF day to day. He discussed the hopes and aspirations of IPF sufferers. Dr Helen Parfrey Lead ILD consultant at Papworth Hospital presented from the medical perspective. She explained the importance of obtaining accurate patient data in order for the NHS to be able to provide appropriate care for patients with IPF. Further information can be found HERE.

The event was attended by healthcare professionals, patients, carers, representatives from Action for Pulmonary Fibrosis and MP’s including Hugh Mc Kinney and Maggie Throup.

The report can be accessed on the Action for Pulmonary Fibrosis website via the link HERE.

dvfFrom left to right, Dr Helen Parfrey, Tony Gowland and Stephen McPartland
taken at Action for Pulmonary Fibrosis Parliamentary Event